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Showing posts from 2015

Stepping Out to Cure Scleroderma 2015

It's time to sign up and register for the Northern Utah: Stepping Out to Cure Scleroderma 2015 race! The site to register for the Scleroderma 5K: http://www.scleroderma.org/steppingoututah To register under my team, or to donate, search from "Team Bre" Under the donate section on the right. It will pull up another link to click on that should take you to my team page. Follow the instruction from there! The walk/run will be held August 8 at Memory Grove Park in Salt Lake City. If you don't want to run/walk, or you are able to make it, you can donate to my team through that same link. All proceeds go towards the Scleroderma Foundation. Thank you all for your love and support. We had an awesome turn out last year, and I'm looking forward to this year's race!

A "Typical" Wednesday

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Yesterday was a "typical" Wednesday. I woke up around 7:03 to get ready for work. It is earlier than my other weekdays because we have a work meeting Wednesday mornings at 8. This Wednesday we were going to breakfast at Village Inn because we met some referral goals. A normal person would think that it's awesome to get a free breakfast, and I guess it is, but it's not so awesome for me. My stomach does not handle large breakfasts very, and using silverware I'm not used to can be hard, really uncomfortable, and hurt my fingers. Not to mention, eating sitting straight up is really hard. Then there's the fear of spilling on myself. I can't just run home and change quickly. It's not that easy for me. When we go out for breakfast, I feel like I have to get something even though I know it will upset my stomach, because I don't want them to question or wonder why I'm not wanting to eat. So I order a my breakfast, even though my stomach is turn...

Somewhat of an Update

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There has not been anything too "exciting"going on, and my head hurts right now, so this is going to just be a quick update/recap. No deep thinking for me. Seriously. Head. Hurts. So, ever since I was little I have been known for my long fingernails. I really just hate to clip them. It's not that I like them long, because I actually don't, but I just have issues clipping them. Now it's even harder for me, so I usually let them go until I can't take it anymore, or I attack myself and cut my thumb or other fingers up. It's silly, but anytime I get a scratch or sore on my hands, they hurt like crazy. I can't tell you how many times I dig into my other fingers with my thumbnails. This is weird, I know. (Remember about my head hurting!) I have always had quite terrible fashion sense. So when I get new outfits, I'm all sorts of excited...until I put them on and realize how helpless I feel in them. This is a cute outfit, and a normal person may hav...

Ramblings

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I am so bad at keeping up to date here. As I lay in bed at night, I have a million awesome blog posts, but when it comes to putting them into words, I have a hard time. Mostly because I'm a terrible writer, and when I'm thinking about it I can fill in the blanks, but the words don't come when it's time to actually write them. But I will update really soon. I promise. In the meantime, for your viewing pleasure: Nick Miller everybody. I love him! Also, I've never actually been on a scooter, but if I had, I'm sure that I would have looked like the girl in my header. It has nothing to do with scleroderma, or me really, but it was cute and I wanted something different!

The Last Few Months

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The last few months have been pretty ordinary. I’ve had two appointments with Dr. Walker (my rheumy) which both went well. They were just basic, “How are you feeling?” appointments, which is fine since nothing has really been too different. I have really enjoyed working with Dr. Walker. I like his sense of humor, his personality, his knowledge. He’s been really great. He makes me feel comfortable and can joke around with me, yet still be quite caring. I’m glad I didn’t listen to others who told me not to go to him. If I felt like there was something others could do for me that he isn’t already doing, then I would request a referral, but I truly believe that he is doing all he can, and I really appreciate him. I mentioned to Dr. Walker at my October appointment that I wondered if there was anything I could do to build back my strength. He suggested physical therapy, so now I go to physical therapy every once in a while. My first physical therapy experience was interesting. Wel...

Been a While...

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I fully intend to post again. Just haven't had any major catastrophe's to blog about. I get great post ideas when I'm trying to sleep, but they're the type you have to write up as your in that mood, otherwise, you just can't do it! But quick update, I feel "FINE". I don't really know how to answer that question, so unless I say, "I feel like crap." Just know I'm doing fine, good, great, grand, wonderful. I really am. I promise. (Just trying to avoid sleep at this point....) Oh hey, that was my first instagram post of the year. #awesome!